Psychological support for people with inherited cancer
Psychological support is an important part of patient care. We’re helping to ensure that those at risk of developing von Hippel-Lindau disease – an inherited cancer syndrome – have access to all the support they need.
We’re dedicated to
Protecting the wellbeing of people who live with an increased risk of developing cancer.
The difference we’re making
- Looking at the benefits of psychological support for those at risk of developing von Hippel-Lindau disease
- Improving our understanding of how being diagnosed as carrying the faulty gene can affect wellbeing
- Helping hospital staff secure extra funding for those who most need support, and to shape future therapies
What we're saying
“Children of patients with the disease can have testing to see if they’ve inherited the faulty gene causing it. If they have, they’re in the agonising situation of knowing they’ll develop a tumour at some point, but not when or where. This study looks to shed light on the impact of diagnosis, and to show what support is beneficial.”
– Francesca Gliubich PhD, Director of Grants at Barts Charity
We’re helping to increase understanding of how people respond to a positive genetic test, and to support those who need it most. Information from this study will guide the development of future therapies for patients.